Health column: Pulmonary hypertension (SVB 2013) Dre Lara Bilodeau Pulmonologist Quebec University Institute of Cardiology and Pulmonology (Laval Hospital) Quebec (Quebec) Canada PULMONARY HYPERTENSION Q: Can you explain to me what pulmonary hypertension is? What causes it? How do you recognize the symptoms? Are all lung transplant recipients equally at risk of developing pulmonary hypertension […]
News
Quebec announces newborn screening for Cystic Fibrosis
Dr. Larry Lands, Director of Respiratory Medicine at the Montreal Children’s Hospital, is one of many people who welcomed the news that Quebec would be introducing newborn screening for cystic fibrosis (CF) on September 17. “Quebec is the last jurisdiction in North America to start newborn screening for CF,” says Dr. Lands. “It’s an important […]
Open Letter
By Tomy-Richard Leboeuf McGregor Executive Director Living with Cystic Fibrosis People living with rare diseases have very specific preoccupations. These preoccupations are seldom the subject of political debate concerning healthcare policies. The current election campaign is no exception. Cystic Fibrosis is the most common rare disease in Quebec with approximately 1500 living with the disease. […]
Elections 2018 – Our Requests
On October 1, 2018, Quebecers will have to elect those who will form our next government. On this occasion, we would like to make known our demands on three topics that are at the heart of the priorities of people living with Cystic Fibrosis. These demands also reach several thousand Quebecers. We invite you to […]
Aid fund – Accommodation and travel
Travel and accommodation costs associated with medical appointments can sometimes hurt the wallet. That is why we are presenting one of the aid funds we have set up to help people living with cystic fibrosis in Quebec. To qualify, you must complete an online form, or print it out and send it to us (only […]
Fax charges at the drugstore
For several months, some pharmacies charge fees to their clients who must send documents to their doctors by fax. This is a common occurrence for people living with cystic fibrosis, for example at the time of renewal of prescriptions. Sometimes the fees charged for such a service can be up to $ 5.00. It is […]
