Living with Cystic Fibrosis is a one-of-a-kind organization globally, distinguishing itself as the only autonomous community organization primarily managed and operated by individuals living with cystic fibrosis. At the core of its mission is the “by and for” philosophy, which includes family members, healthcare professionals, and those directly impacted by the disease.
For nearly 40 years, Living with Cystic Fibrosis has been dedicated to developing its expertise in Quebec by creating tailored local services that directly address the various needs of the cystic fibrosis community.
Financial assistance funds
Certain services require the submission of specific forms to assess eligibility. If this is your first request for assistance, we may also need proof of your cystic fibrosis diagnosis, which should be provided by a member of your CF clinic.
Discover our five (5) Assistance Funds
We offer financial support to address various specific needs of individuals living with cystic fibrosis that are not covered by the public healthcare system.
- Food Assistance
- Medical Transportation
- Training and Wellness Support
- Medical Equipment purchase Aid
- Emergency Assistance
Don’t hesitate to contact us if you need assistance with completing the documents.
If you don’t have access to a printer, please contact us for assistance.
Cystic Fibrosis Diagnosis Certificate Form
Information and awareness
Magazine Santé Vous Bien (SVB)
Magazine Santé Vous Bien (SVB for short). The magazine is published once or twice a year and includes accessible scientific articles, testimonials, profiles, data, and personal stories. In 2021, the organization implemented an environmental policy, and the magazine has since transitioned to a fully digital format.
Social media campaigns
Living with Cystic Fibrosis continually engages with its community across major social media platforms, including Facebook, Instagram, LinkedIn, YouTube, and TikTok.
The communication team seizes every opportunity to raise awareness and shed light on the daily challenges faced by individuals living with cystic fibrosis.
Promotion of Healthy Lifestyle Habits
*NEW*
- Online educational webinars
- Home workout plan (YouTube)
- Activity calendar
- Blog articles
Support, active listening and guidance
No one can understand your reality better than someone who is facing it.
That’s why Living with Cystic Fibrosis provides confidential support, empathetic listening, and personalized guidance to all its members. Whether you have questions, need information about cystic fibrosis, or simply wish to connect with someone who understands, our support services are here to assist you. Explore our website for valuable information and resources or contact us during our regular business hours throughout the week.
Living with cystic fibrosis
629, rue Prince-Arthur Ouest
Montréal QC H2X 1T9
info@vivreaveclafk.com
514-288-3157
Family & Friends
VAFK serves the entire CF community by offering membership to parents, families, siblings, and friends of individuals with cystic fibrosis. This inclusive approach enables the creation of services tailored to address their specific needs effectively.
Christmas stockings campaign
Every year during the holiday season, VAFK distributes Christmas gift baskets and food to families across Quebec. This initiative is carried out in collaboration with FK clinics throughout the province.
For more information or to receive a Christmas gift basket, please contact us!
TOOLKIT FOR PARENTS RECEIVING A NEW DIAGNOSIS
Created by the Tousse Ensemble support network between 2014 and 2016, this toolkit is designed to help parents navigate a new diagnosis. It provides a comprehensive digital resource hub brimming with valuable information and support.
Details available in spring 2025. Stay tuned!
Our programs and services are made possible by the generous support of our donors and the commitment of dedicated fundraisers. We extend our heartfelt gratitude to our valued sponsors, donors, and partners for their vital contributions.
