All about Cystic Fibrosis

Interviews and testimonials

In their words, people living with Cystic Fibrosis give the experience of living with the disease on a daily basis. Would you like to share your testimony? Write us!

 

 

In Vitro Fertilization: A Unique Adventure

Testimonial by Martin Lemire I have always dreamed of becoming a father, and how I achieved this – adoption, having children with my spouse or artificial insemination– made no difference to me. I was lucky to meet the most wonderful person in the world: my spouse, Isabelle. At the beginning

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Shoot for the Stars

From SVB 2007 Testimonial by Mary-Pier Gaudet My happy childhood began on December 15, 1983, in Ville Marie, in the lovely Témiscamingue region. When I was diagnosed with cystic fibrosis at 18 months, however, my life took a different turn. Yet my unflagging good spirits helped me navigate through life’s

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Life goes on!

From SVB2017 By Odile Lefrançois Montreal (Quebec) Seventeen years ago, a little girl was born. It could’ve been any common story, only this one wasn’t. When two days old only, the little girl had to be operated because her digestive system didn’t work properly. First sign to the doctors, they

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Hopes and dreams

By Élise Bouchard Terrebonne, Quebec SVB 2013 My name is Élise Bouchard; I’m 33 years old and I have cystic fibrosis. I was diagnosed at birth. I had my first operation 30 hours after I was born because my intestines were blocked with meconium and secretions caused by cystic fibrosis while

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My way

By Marie-Ève Beaulieu Napierville, Quebec SVB 2013   For a long time, I thought my story was different from everyone else’s. I have to admit I was prejudiced against people, like myself, who had cystic fibrosis. In hindsight, and especially because of some very unexpected events that occurred in my

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Being someone for somebody

By Lysandre Barrette Île-Perrot, Quebec SVB 2013 The big day It was September 28. Like any other Wednesday, I was working as a legal assistant in my father’s law office. Around 3:00 p.m., I was at my workstation when my father walked towards me and handed me his cell phone, without

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This is your story: Interview with Laval de Launière

Interview conducted by Stéphanie Wells Laval de Launière has two professions: he is the Director General of the Adult Cystic Fibrosis Committee of Quebec (ACFCQ) and a social worker in the cystic fibrosis clinic at the Hôtel-Dieu Campus of the University of Montreal Hospital Centre (CHUM).   Santé vous bien (SVB): Laval,

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If the disease could teach me something…

I was six months old when I was diagnosed. In the beginning of the Eighties, the prognosis wasn’t encouraging for affected children’s future. Despite this, my parents decided to thumb their noses at reality. Thus, they will did everything in their capacity to have a healthy Cystic Fibrosis child. The

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One kilometer at a time

Sophie Jacob Ste-Marthe-sur-le-Lac (Québec)   Hi, my name is Sophie Jacob, a 34 year old happy and young woman, truck driver and social network media facilitator. I am also the author of the book Un kilomètre à la fois (One kilometer at a time). I received a diagnostic of cystic

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Helping by communicating

On October 17th last year, Living with Cystic Fibrosis awarded the Michel-Paquette prize to the journalist Harold Gagné. For several years now, this kind-hearted man has been supporting the cause of organ donation through his humane and respectful reports. He is also an important ally for the cystic fibrosis community.

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