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Yearly Archives: 2017

Pre-transplant nutritional status: a new study

Interview with Valérie Jomphe, nutritionist Transplant Clinic of the Notre-Dame Hospital of Montréal (CHUM) By Tomy-Richard Leboeuf McGregor On the occasion of the 40th European Cystic Fibrosis Conference, held in Seville in June, nutritionists Valérie Jomphe (Notre-Dame hospital transplant clinic) and Marjolaine Mailhot (Hôtel-Dieu cystic fibrosis clinic ) Presented the

Michel-Paquette Award 2017: submit nominations!

Annually, Living with Cystic Fibrosis awards the Michel-Paquette Award to recognize the contributions and contributions of individuals and organizations working in the field of cystic fibrosis. The selection committee calls on you to submit different applications. This is the time to show your gratitude to those who make a difference

Free air conditioners and fan

We do not feel it yet, but the great heat will arrive quickly! We know that it can be difficult for many of us to breathe well during periods of heat wave. This is why we offer the possibility for people living with Cystic Fibrosis in need to receive a

Free Dental Care

The McGill University Faculty of Dentistry will once again be offering free dental treatments this summer, from July 4th to 27th, for people living with Cystic Fibrosis. Treatment is provided by fourth-year dental students under the supervision of general practice dentists. People who are seen with this program, supported by the Quebec

Tributes to Louis Plante

On Saturday, April 8, one of us, Louis Plante, died waiting for a second pulmonary transplant. In addition to being involved in our organization several years, Louis is known to be the inventor of the Frequencer, a respiratory physiotherapy device used by several people living with cystic fibrosis. The creation

New effective treatment for some Cystic Fibrosis mutations!

Great news for people living with CF! On March 29th, Vertex released two new Phase 3 studies on the use of a CF treatment. Indeed, the association of ivacaftor (activator, active principle of Kalydeco®) and of the corrector VX-661 (tezacaftor) proved effective for patients aged 12 years and older and

Participate in the development of a new mobile app adapted to CF!

We are pleased to inform you that we have an exclusive partnership with SELFCAREMVMT to adapt a mobile application for people living with Cystic Fibrosis. We are currently looking for CF people who would be interested in participating in the development phase for a month. Afterwards, your comments will be

Personal development assistance Funds

Would you like to develop yourself by attending a specific personnal formation or course? Living with Cystic Fibrosis has developed a fund to support you financially in your efforts. Indeed, we propose to refund 50% to 100% of your registration fees, up to $ 100, upon presentation of an invoice

Cystic Fibrosis: A diagnostic test soon available for everyone?

While neonatal screening is still waiting in Quebec, research shows that a way to detect Cystic Fibrosis, theoretically more effective than laboratory tests, could be done from smart phones at home. Thanks to a device, it would suffice to deposit a little sweat on the device to know the result.

Need a dental cleaning?

Students at the Cégep de Terrebonne Hygiene Clinic are looking for people who want a complete dental cleanup, with X-ray (if needed), at a cost of $ 60. In the case of minor treatments, it may take two to three additional appointments, which are included in the initial price. Appointments are